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Asking for Mother, Female, 60 years old, DhA karachi
My mother was diagnosed with als/MND in 2017 ... she can't speak swallow . Her condition is worsening day by day.. she is on bi pap .
Your mother needs feeding tube, most likely permanent one called PEG. This tube is connected directly to stomach from outside with a large bore.
For now you can pass NG tube via nose for sake of feeding. This step is ultimately taken in this disease to avoid severe chest infection or aspiration pneumonia.
if swallowing has become so problematic then it's wise to not feeding anything through mouth. a temporary measure is a tube through nose ( NG tube), a more permanent solution is a tube through abdomen wall ( PEG ). in ALS after a while it becomes necessary to feed through alternate methods , prevent food and water entering lungs. are there other symptoms like mood changes? there are other symptoms of ALS that may be controlled with different medicines. if you haven't followed up with a neurologist recently it's better to get her evaluated before taking a major decision like feeding tube.
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farzana saif
My father was also patient of als.we started rilutek but he died after taking just three tablets
Medical treatment including glutamate antagonists and non invasive ventilation
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