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Asking for Other, Female, 28 years old, Europe
My 7 months other daughter has a disorder called neurofibromatics. We live in abroad, here the doctors told us that she might not grow slow as compared to other childern. She might have tumors, cancer when she goes to a specfic age. It makes me so streesed and hearbroken. Kindly doctors guide me that this disorder is so serious and how long a person can live? Please open it for the coummity if anybody is having the same disorder so they can share their experince. Please pray for my daughter health and life. Thankyou
This is a chronic genetic disorder and a regular follow up examination is required for that. unfortunately, there is no permanent cure and we need to address all the anticipated complications.
Children with this condition do have medical issues, not all have all the problems. Every child is different and may have different issues with neurofibromatosis. Although there is slight increased risk of certain tumors, not every child develop these.
As it is genetic condition, only the symptoms can be managed by appropriate medical professionals.
Please have a look at this link for further information.
https://kidshealth.org/en/parents/nf.html?ref=search
Neurofibromatosis is a genetic disorder which affects mainly Skin, Bones and Brain. As it is a genetic disorder, unfortunately there is no cure to it. Treatment is mainly supportive and is aimed at complications of the disease, rather than disease itself. There are two types of NF. Type 1 and Type 2. What type your child is having?
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